unknowncystic

unknowncystic

11p

7 comments posted · 0 followers · following 0

15 years ago @ Run Sickboy Run - Day 5 in the Hole · 0 replies · +1 points

Get well and get out of there. You're looking better than day one. Best wishes.

15 years ago @ http://www.cfstinabug.... - Hanging Out In the Hole · 0 replies · +1 points

Glad to hear that there is some good news in your day. Keep fighting the fight. I'm sending good vibes from the Valley.

15 years ago @ Run Sickboy Run - First Hospital Stay wi... · 1 reply · +1 points

Do you actually get to stay overnight in the hospital with Ronnie?

15 years ago @ Run Sickboy Run - Thankful (again) for C... · 0 replies · +1 points

I hope you make it in. I've done two studies and had great luck each time. When will you mention what the drug name is? Or did I miss that in the post? Probably the latter.

15 years ago @ Run Sickboy Run - The 7 Worst Things Abo... · 0 replies · +1 points

Ronnie,

It's painful just reading about it. You're more patient than I. I would have been to the doctor asking for USA x-rays. I agree with you about painkillers. They don't help my breathing. Time for you to get a third opinion from the correct type of doctor.

UC

15 years ago @ Run Sickboy Run - Rib Update · 1 reply · +1 points

Ronnie,

I've been following this injury of yours. Why do I feel like I missed what it is? Did you find out what is wrong? Cracked rib? Did Mandi give you a kick to the chest or something?

UC

16 years ago @ Run Sickboy Run - When Tune-Ups Don'... · 0 replies · +1 points

Ronnie,

I'd like to suggest a future post from you. Can you get your cf team to give an explanation of this four-month rotation you're on? It's interesting. I've never really heard of it before. My docs are the opposite. I have to be dying before I go in for IVs. Are yours concerned at all with resistance? I do get the logic of maintaining lung function because the day is coming when we're going cure this disease and we'll all be stuck with the lung function we have at that moment (kind of like a game of musical chairs - when the music stops . . . ).

So, if you can shed more light on the logic of this strategy, I'd be interested in knowing more. Also, you remind me of all those great characters in prison movies - the ones who get put in solitary for six months but take it like men and pop out stronger than ever. 26 days in the hospital? YOU'RE THE MAN!