lungrunner

lungrunner

13p

3 comments posted · 0 followers · following 0

15 years ago @ Run Sickboy Run - First Hospital Stay wi... · 0 replies · +1 points

About the coffee pot thing. We left ours on one day when we had an appointment and we were all paranoid that it was going to buurn down our apartment but apparently we bought one that shuts off after a while...thanks for that. Not sure why they say to unplug them...I guess anything can happen...

15 years ago @ Run Sickboy Run - First Hospital Stay wi... · 0 replies · +2 points

I was reading the blog and the comments and I have to agree with Elle! Our spouses are something special..My fiance and I have been together for almost a year (I know, not that long) I am being evaluated for transplant and when he isn't working he is at my side taking me to doctor's appointments, luggin my oxygen machine around, cleaning and cooking when I don't feel good, and hooking up my ivs when I am on home meds. I have been hospitalized twice since we have been together (I usually do ivs at home) and both times he had to work so he made sure he texted me throughout the day and called me every night to see what the doctors said. When he didn't have to work he stayed with me as long as he could. My cf hospital has strict visiting rule 12pm-8pm...sometimes they let people stay a little later. I know its a lot for us to handle and I can't imagine what its like for our spouses.

15 years ago @ Run Sickboy Run - Finally LIVING with CF... · 0 replies · +1 points

lol...me and my boyfriend live together and I am the one who is annoyed with all the medications and medical supplies, and I am the one with cf. We live in a one bedroom apartment and when I get sick I don't feel like moving around much and so my med supplies kinda lay where they are set down until I get around to them. I am home oxygen all the time and he doesn't mind the tubing running through the apartment but I can't stand it, then again, I am the one who is always getting caught on everything...lol...the life of a cfer is very interesting and chaotic at times.