IntenseDebate - Aspergirl Maybe

13 years ago @ http://thinkingautismg... - Passing · 1 reply · +1 points

As I read this, I am thinking that I want to come up with a stock rejoinder to use in these situations, maybe something like, "I guess I'm doing a good job of hiding it then. You'll know I'm really comfortable around you when you can tell."

13 years ago @ http://thinkingautismg... - Scarred · 0 replies · +1 points

So beautifully expressed but so incredibly sad. Thank you for putting this into words.

13 years ago @ http://thinkingautismg... - Autistic Grief Is Not ... · 0 replies · +1 points

This is a wonderful article and is perfect for sharing with others in my life, thank you! I recall it taking several months to begin feeling emotions of sadness when my grandfather passed away many years ago. When my grandmother died this spring, I actually explained to my mother and brother about how I typically handled things so they wouldn't think I was not grieving my grandmother's death.

I have experienced the shutdown most significantly when I separated from my husband. Just sitting at my desk during work hours was difficult, let alone actually getting any work done. I had to focus on very simple tasks and give myself a lot of time to recover from that. I am just now able to work a full day and feel productive six months later.

13 years ago @ http://thinkingautismg... - The Sky's the Limit · 0 replies · +1 points

What a powerful story! I especially love this line- "His 17 years have played out in both subtlety and exaggerated drama."

I remember many times since puberty when I would curl in bed holding my head with both hands sure that this would be the day I completely lost my mind, feeling like I was being torn apart from the inside out. Thankfully, it happens much less often now and I can at least remind myself that it will pass, but it's a very scary thing to experience.

13 years ago @ http://thinkingautismg... - Michael Drejer and Aut... · 0 replies · +1 points

"Also handling the NT world is definitely a superpower."

AMEN to that one!

14 years ago @ http://thinkingautismg... - The DSM-V Changes From... · 0 replies · +1 points

So well said, chavisory. As someone who was diagnosed with Asperger's last year at age 41, I completely agree with this comment and I greatly appreciate the original post.

Qualifying for a diagnosis under the DSM and meeting the requirements for services in school or through governmental programs are two different things. That is where I see the levels of severity coming into play. I am able to function at this point with the help I can obtain through my private health insurance and my personal support system, but my son with autism needs services from both the dept of education and the dept of public welfare to function appropriately right now.

Both of us, however, meet the criteria for an autism spectrum disorder under either the current or proposed list.

14 years ago @ http://thinkingautismg... - The Advocate/Parent Di... · 1 reply · +1 points

Kassiane,
This is the first post of the dialogues that I have commented on, and I mainly wanted to say thank you for sharing your experiences. I do think it is so important not to let people even start down the road towards dismissing your needs or wants in any way, and I am sorry that you have had to fight this battle practically on your own.

I am a parent of a child with autism and am currently being evaluated for a possible autism spectrum diagnosis myself. I recall so many times when I have gone into meetings to discuss something that happened with my son and being treated as if I were making too big a deal out of something small. But if you allow a little injustice, the next one doesn't seem as bad, and then really bad things can seem okay.

14 years ago @ http://yeahgoodtimes.b... - Guest Blogger: What to... · 0 replies · +3 points

Great post - I think focusing on the person's intention and also trying to figure out whether the person is interested in learning how to better phrase things is a really good idea in most of these cases. If the person is truly good-willed, I would rather they say something than to completely avoid the topic altogether.

As I commented elsewhere earlier this week, I used to become offended at some well-meaning things my MIL would say and now that she has mid-stage Alzheimer's, I would welcome any of our former conversations.
My recent post Update on Spring Fever

15 years ago @ http://thinkingautismg... - On Autonomy and Establ... · 0 replies · +1 points

I read a quote once that it is not enough to make our kids ready for the world, we must also make the world ready for our kids. I apologize that I don't have the reference, but it did make an impact on me.

I hope that I am doing both - helping my son become all that he can be in every area of his life while also advocating for him to be accepted and valued for who he is in our community. I appreciate hearing that even with an adult son, you are still constantly evaluating the road ahead.

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