True CF Awareness Comments

Diana

Tue, 12 Jun 2012 19:48:29 +0000

First of all, you're incredible. Second of all, thank you. My boyfriend has CF, and I've always known about it because my uncle had it, and my family has been involved in fundraising and events for as long as I can remember...but it strikes me often, as my boyfriend is going through things, that despite supposedly being involved, I know very little about the day-to-day of living with CF. It's always been fundraising, it's always been general information about the illness and the details--and maybe more importantly, the differences--seem to get skipped. I only know and remember snippets of my uncle's fight (he was a runner, too, and that was back in the 60's/70's--and I remember being 8 and he still was running). There's all these blanks, and all of these...disconnects with the CFF (as great a foundation as it is!), because I look at these sorts of things and just think--that wasn't my uncle, that's not my boyfriend, so who is it and what does it mean? Your blog is filling in some missing pieces for me, and fleshing out some of my wonderings, and I just keep thinking, this is brilliantly done. You have such a great way of writing!

cindy baldwin

Wed, 2 May 2012 17:14:14 +0000

So, I've been thinking about this post ever since I read it. I love it, but also feel a little differently on this subject, I think! After thinking about it for days, I finally blogged my thoughts, since they were way too long and complicated for a comment: http://www.beingcindy.blogspot.com/2012/05/awaren...

Tonya

Thu, 26 Apr 2012 12:52:26 +0000

I agree whole-heartedly, Lauren! Thank you for writing what I've been thinking for a long time! I remember this analogy being used at CFF events shortly after my son was diagnoed 14 years ago. I thought it was far-fetched then, and still do. Now it's being spread around Facebook and reaching many more people than it did before. It makes me angry!...especially when posted by parents of young children with no lung involvement yet.

Aubrey Bean

Wed, 25 Apr 2012 02:12:04 +0000

This is awesome..and so true! It's frustrating when everyone thinks all of us are the same. Thanks for all your blogs they're awesome and I love reading them! BTW I found out through your writing that we go to the same hospital, and your doctor actually did a bronch on me last summer! haha keep being awesome girl, we all love reading :)

Michelle Scott

Wed, 25 Apr 2012 00:53:28 +0000

Very well stated! I would like to share this, as well.

Elicia Otterson

Wed, 25 Apr 2012 00:22:13 +0000

Lauren thank you so very much for this post.

RunSickboyRun

Tue, 24 Apr 2012 16:29:18 +0000

You took the words right out of my brain and put them into a blog. I saw this post just before I was going to write my own, and I thought so much of it, I shared your post on my blog instead. Thank you so much for your honesty and giving your thoughts on this topic much more delicately than I ever could.